Selective mutism

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Selective mutism
Classification and external resources
ICD-10 F94.0
ICD-9 309.83 313.23
MedlinePlus 001546
eMedicine ped/2660 

Selective mutism is a childhood anxiety disorder [1] [2] in which a person who is normally capable of speech is unable to speak in given situations, or to specific people.

Contents

[edit] Description

In the Diagnostic and Statistical Manual of Mental Disorders selective mutism is described as a rare psychological disorder in children. Children and adults with the disorder are fully capable of speech and understanding language, but can fail to speak in certain social situations when it is expected of them. It is in presentation a reluctance to speak in certain situations. They function normally in other areas of behavior and learning, though appear severely withdrawn and some are unable to participate in group activities. As an example, a child may be completely silent at school, for years at a time, but speak quite freely or even excessively at home.

Particularly in young children, selective mutism can sometimes be confused with an autism spectrum disorder, especially if the child acts particularly withdrawn around his or her diagnostician. Unfortunately, this can lead to incorrect treatment. Individuals with selective mutism can communicate normally when in a situation in which they feel comfortable, as can many individuals on the autism spectrum, especially those with Asperger's Syndrome. Although children on the autism spectrum may also be selectively mute, they display other behaviors--hand flapping, repetitive behaviors, social isolation even among family members (not always answering to name, for example), sensory integration difficulties, poor eye contact--that set them apart from a child with selective mutism. If a child is simply not speaking in social situations, this is likely not an autism spectrum disorder, but may be selective mutism. Children with selective mutism are not necessarily autistic, but children with autism, which has a large anxiety component, frequently display symptoms of selective mutism. It is critical to have a child with these symptoms evaluated by a developmental pediatrician.

Selective mutism is usually characterized by the following:

  • Consistent failure to speak in specific social situations (in which there is an expectation for speaking, e.g., at school) despite speaking in other situations.
  • The disturbance interferes with educational or occupational achievement or with social communication.
  • The duration of the disturbance is at least 1 month (not limited to the first month of school).
  • The failure to speak is not due to a lack of knowledge of, or comfort with, the spoken language required in the social situation.
  • The disturbance is not better accounted for by a communication disorder (e.g., stuttering) and does not occur exclusively during the course of a pervasive developmental disorder, schizophrenia, or other psychotic disorder.

The former name elective mutism indicates a widespread misconception even among psychologists that selective mute people choose to be silent in certain situations, while the truth is that they are forced by their extreme anxiety to remain silent; despite their will to speak, they just cannot make any voice. To reflect the involuntary nature of this disorder, its name was changed to selective mutism in 1994.

The incidence of selective mutism is not certain. Due to the poor understanding of this condition by the general public, many cases are likely undiagnosed. Based on the number of reported cases, the figure is commonly estimated to be 1 in 1000. However, in a 2002 study in The Journal of the American Academy of Child and Adolescent Psychiatry, the figure has increased to 7 in 1000.

[edit] Causes

Most children with selective mutism have an inherited predisposition to anxiety. They often have inhibited temperaments, which is hypothesized to be the result of over-excitability of the area of the brain called the amygdala[3]. This area receives indications of possible threats and sets off the fight-or-flight response.

Some children with selective mutism may have Sensory Integration Dysfunction (SID), which causes the child to have trouble processing some sensory information. This would cause anxiety, which may cause the child to "shut down" and not be able to speak. Many children with selective mutism may have some auditory processing difficulties.

About twenty to thirty percent of children with selective mutism have speech or language disorders that add stress to situations in which the child is expected to speak. Similarly, some children come from bilingual families, have lived in a foreign country, or have been exposed to a foreign language during young childhood and are insecure with the language they are expected to speak. In both these situations, the children have inhibited temperaments, but the stress caused by their language difficulties cause them to become anxious enough about speaking to become mute.

There is no evidence at all that children with selective mutism have suffered abuse, neglect, or trauma but these cannot be ruled out. Children with selective mutism nearly always speak in some situations (though their mutism may progress to the point where they cannot speak anywhere) while children with trauma-induced mutism usually suddenly become silent in all situations.

Despite the change of name from elective to selective mutism, a common misconception remains that a selectively mute child is defiant or stubborn. In fact, children with selective mutism have a lower rate of oppositional behavior than their peers in a school setting.[4]

[edit] Treatment

Contrary to popular belief, people suffering from selective mutism do not necessarily improve with age[5], or just "grow out of it." Consequently, treatment at an early age is important. If not addressed, selective mutism tends to be self-reinforcing: those around such a person may eventually expect him or her not to speak. They then stop attempting to initiate verbal contact with the sufferer, making the prospect of talking seem even more difficult. Sometimes in this situation, a change of environment (such as changing schools) may make a difference. In some cases, with psychological help, the sufferer's condition may improve. Treatment in teenage years may, though not necessarily, become more difficult because the sufferer has become accustomed to being mute.

Forceful attempts to make the child talk are not productive, usually resulting in higher anxiety levels, which reinforces the condition. The behavior is often viewed externally as willful, or controlling, as the child usually shuts down all vocal communication and body language in such situations - this can often be wrongly perceived as rudeness.

The exact treatment depends a lot on the subject, their age and other factors. Typically, stimulus fading is used with younger children, because older children and teenagers can recognize the situation as an attempt to make them speak.[6]

Some in the psychiatric community believe that anxiety medication may be effective in extremely low dosages but that higher doses may just make the problem worse. Others in the field believe that the side-effects of psychiatric medications — in any dose and on any child — are so dangerous as to negate any temporary benefit, preferring purely behavioral and psychological interventions.

Effective treatment is necessary for a child to develop properly. Without treatment, Selective Mutism can contribute to chronic depression and other social and emotional problems.[7][8]

[edit] Stimulus fading

In this technique the patient is brought into a controlled environment with someone who they are at ease with and can communicate. Gradually another person is introduced into the situation involving a number of small steps.

These steps are often done in separate stages in which case it is called the sliding-in technique, where a new person is slid into the talking group. This can take a relatively long time for the first one or two faded in people.

[edit] Desensitization

The subject is allowed to communicate via non-direct means to prepare them mentally for the next step. This might include email, instant messaging (either text, audio, and/or video), or online chat, until they are in a position to try more direct communication.

[edit] Drug treatments

Many practitioners believe that there is evidence indicating that antidepressants such as fluoxetine (Prozac) may be helpful in treating children with selective mutism and even that medicine is essential to effective treatment. The medication is used to decrease anxiety levels to speed the process of therapy. Use of medication would end after nine to twelve months, once the child has learned skills to cope with anxiety and has become more comfortable in social situations[9]. Medication is more often used for older children and teenagers whose anxiety has led to depression and other problems.

However, other practitioners and activists (see articles on Peter Breggin and David Healy (psychiatrist)) stringently decry any use of psychiatric medications on children and note the lack of medical proof of genetic links to behavioral disorders. The denunciation of psychotropic intervention on children with behavioral anxiety disorders has intensified particularly since lawsuits against several drug companies — current to 2005 — have exposed previously unseen internal research documents[10] linking fluoxetine and other SSRI antidepressants with increased risk of suicide, psychosis and — ironically enough — damage to areas of the brain which could affect language production and normal social development.


Medication, when used, should never be considered the entire treatment for a child with selective mutism. The child should, while on medication, be in therapy to help him or her to know how to handle anxiety and prepare him or her for the world[11].

[edit] Status

In the United States, schoolchildren who have received a professional diagnosis are usually placed in normal classroom settings and given special education Individualized Education Programs similar to schoolchildren with other disabilities (i.e. ADHD) and learning disabilities. Children with selective mutism may qualify for special education under the Individuals with Disabilities Education Act (IDEA) or Section 504. Under IDEA, they may fall under the category of "other health impairment," "emotional disturbance," or "speech or language impairment[12]."

In Australia, where the condition is classified as a disability[13][14], diagnosed adults who are independent from a spouse or parent qualify for entitlement welfare.

[edit] Cultural references

  • The title character of Dori Jones Yang's novel The Secret Voice of Gina Zhang has selective mutism complicated by bilingual issues. When she begins school in America, she finds that her throat closes up when she attempts to speak in English or her native language, Mandarin.
  • The 2001 song "She's Given Up Talking" by Paul McCartney from the album Driving Rain conforms almost perfectly to a clinical description of selective mutism in childhood, describing a young girl who is mute at school yet normally talkative at home ("When she comes home it's a yap yap yap/ words start to flow like water from a tap").
  • Rajesh Koothrapali, a fictional character in "The Big Bang Theory", has a selective mutism that occurs when he is speaking to women.

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